Sunday, June 7, 2009

Benjamin

I'm really bad about keeping up my blog... guess Facebook and Twitter have pretty much enabled me to cover all my action in simple updates and keep in touch with my friends in a very cold, disconnected sort of way...

Anyway, I feel like expressing my grief and anxiety here now.
I'm sick of my son being in the hospital for over a month now.
He was admitted May 12th, one week after being in the emergency room for a rash that was dismissed as an unknown allergic reaction to who knows what, because he was losing weight and constantly throwing up his formula and having diarrhea.
After two weeks of blood tests, bruises, x-rays, CT-scans, and trying different formulas, the doctors finally decided he needed bowel rest.
He was on an IV, with TPN that also contained prevacid for acid reflux, for about 11 days, gaining weight, but getting bloated by all the fluids. He had to have an albumen transfusion and then a diuretic to alleviate the water weight and bloating, but he's still below birth weight.
At least now his intestines have healed up and he's been accepting the Neocate formula at half strength with little to no problems.
While we don't want to rush things, we do want him to gain weight again, and we want him to come home already.
Seeing him in the hospital every day for about a month is depressing us every day more and more, and it's been a strain on the family.
I leave in a couple days for a business trip and my wife has to deal with this on her own for a week, making it even more difficult...
I just want my Benjamin to come home.

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